Jesy Nelson reveals her twin daughters have SMA type 1, a severe muscular disease that may prevent them from walking
English singer and former Little Mix star Jesy Nelson has revealed that her twin baby daughters have been diagnosed with Spinal Muscular Atrophy (SMA) type 1, a rare and severe muscular condition.
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In an emotional Instagram video, Nelson explained that the condition affects all muscles in the body, including those used for walking, neck strength, breathing, and swallowing.
She warned that without treatment, SMA can be fatal before a child reaches two years old.
“It does affect every muscle in the body, down to legs, arms, breathing, swallowing. After the most grueling three, four months, and endless appointments, the girls have now been diagnosed with a severe muscular disease called SMA type 1. Essentially, what it does is, over time, it kills the muscles in the body, and if it’s not treated in time, your baby’s life expectancy will not make it past the age of two. They’re probably never going to be able to walk. They probably will never regain their neck strength, so they will be disabled,” Nelson said.
She expressed gratitude that her daughters are receiving treatment, stressing that it has been life-saving.
“Because if they don’t have it, they will die. The reason I wanted to make this video was because the last three months have honestly been the most heartbreaking time of my life. I literally feel like my whole life has done a 360,” she added.
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Nelson’s revelation has drawn support from fans and fellow celebrities, highlighting the challenges faced by parents of children with rare medical conditions and the importance of timely medical care.
